Our Vision
Give rare cancer patients the chance to live richer, fuller lives.
Life, amplified.
What we're fighting
A diagnosis of high-grade small cell neuroendocrine carcinoma (NEC) is especially challenging because of its rarity.
Nichole bravely faced one of the rarest forms of high-grade small cell neuroendocrine carcinoma of the cervix (SCNCC): less than 250 women are diagnosed with it annually in the US, out of nearly 2 million cancer diagnoses.
Rarity constrains funding opportunities and discourages scientists from pursuing research into high-grade NECs, leaving the work decades behind other cancer research. The lack of clinical evidence limits access to medicines, advancements in treatment, and, in turn, survival rates.
As a result, patients and caregivers navigating these diagnoses must become their own advocates, seek out hard-to-find research, consult multiple doctors, and often petition the FDA directly for treatment. This exhausting process costs precious time, a finite resource.
This is the fight we continue in Nichole's honor.
Our Purpose
We exist to positively influence the experience of patients and their families facing rare cancers and make a difference in their lives.
Our Mission
We’re committed to making a difference in people’s lives by raising awareness and supporting scientific research of high grade small cell neuroendocrine cancer, including rare and complex cases, like neuroendocrine carcinoma of the cervix, to improve the patient experience and open access to medical resources, initiate clinical trials to enhance treatment options for providers and empower oncologists to improve and save lives.